Wednesday, March 23, 2005
Sunday, March 20, 2005
Saturday, March 19, 2005
Sunday, March 13, 2005
Now I need to work out why he didn't get fed.
The machine was going, nothing coming out the end of the tube, but it wasn't alarming.
this means that:
Saturday, March 12, 2005
Friday, March 11, 2005
All the children took part in red-nose day today, so all four of mine left home with red hair and red noses, a bit like this one!!
Thursday, March 10, 2005
Firstly, Michael will be moving up, he'll still be in the same school, but after the Easter Holidays he will be going full-time into another class. Very small class of about 6, with 2 teachers, but he won't be in the Autism base anymore.
The aim of the Autism base is working towards intergrating the children either into the main area of the school, which is mild-moderate learning disabilities, or if at all possible back into mainstream. I say mainstream, because one of Michael's peers is returning to mainstream after Easter. So that was good news, Michael is getting promoted.
We were given the opportunity to look at Michael's work, it appears that Michael is struggling with pencil control, any written work was done hand-over-hand. But it was lovely to see his efforts at colouring in, and picking out the biggest on the line, and his news book.
All Michael's teachers said what a lovely little boy he is, and how amazingly bossy he is! Apparently one of the aims he is working on at the moment is to "Stop talking and answering for everyone else" I think my son has a big mouth!!!
I also got chance to speak to the SLT, or Wendy Bitch as Michael call's her. No she's not, she is lovely, but Michael can't quite get his mouth around Speech and it comes out as Bitch. I digress, about Michael's most recent diagnosis......jury is still out on that one, so watch this space!
Wednesday, March 09, 2005
So I have ordered a couple of books on Social Stories from Amazon in the hope that they will help me put something together for him, to try and end these tantrums.
This is what Social Stories are:
What is a Social Story™?
This author first defined Social Stories early in 1991. Since that time, experience with Social Stories and an increasing understanding of the approach has resulted in revisions of the original definition. A Social Story is a process that results in a product for a person with an autistic spectrum disorder (ASD). First, as a process, a Social Story requires consideration of – and respect for – the perspective of the person with ASD. As a product, a Social Story is a short story – defined by specific characteristics - that describes a situation, concept, or social skill using a format that is meaningful for people with ASD. The result is often renewed sensitivity of others to the experience of the person with ASD, and an improvement in the response of the person with ASD.
For further info visit here
Stress level right now on a scale of 1-10: 100
Why am I stressed???
Pass, I wish I knew, it might have something to do with the fact that the kids played up at bed-time. I got Michael bathed, no problem, got him out of the bath, and two horns and a tail appeared.
He wanted to go to the loo, I'm sure that kid thinks I'm silly, he knew as well as I did he didn't want to go to the toilet, he wanted to get back into the bath. So whilst I'm trying to dry him off, he is screaming and creating and telling me that his name is fred*
Michael then starts fighting me, and once I'd lost my grip that was it, he started throwing himself against the wardrobes, shouting "My name Fred"*
I have to confess I do find these sessions extremely difficult to manage, I don't know how to deal with him. I was very firm in telling him his name was Michael, but I think he know's it winds me up, so he does it all the more.
I struggle in knowing how to get him to listen to me, as he was creating tonight he was watching himself in the full length mirror on the wardrobe doors - who needs an audiance when you have yourself??
How do you negotiate, communicate, with a child who knows nothing but their own rage and their own feelings??
He is now snoring, and I am stressed!
*name changed to protect the innocent!
I'm trying it out on Michael at the moment, he thinks it's funny!!!
I signed "good boy" to which he replied "not boy. Michael" talk about putting me in my place, so now I have to do "good boy Michael"
For more info on Makaton click here
Tuesday, March 08, 2005
Don't get me wrong, I'm pleased that he enjoys school and that he has a lovely time whilst he's there, and that he's settled etc. He has just had 4 days off school, he was off Friday becasue of the snow, and then again yesterday, (Monday) because of an occasional day, which upset his routine especially as all the others were in school or playgroup. I do realise that he gets so much out of being in school, especially the 1-2 attention, they do so much with the kids to fill their days.
This morning he was intergrated into a class within the main body of the school, the class he will probably join full-time sometime between now and September, and then this afternoon apparently they have been painting butterflies. He got home from school and told me all about it. Which is wonderful but makes me think that perhaps he is bored at home, and that I am not able to do enough to keep him occupied.....ok I confess, mummy-guilt!
Monday, March 07, 2005
This is a Self Portrait by Michael.
This is the first picture that Michael has ever drawn all by himself that really resembles anything. Developmentally he is behind in his drawing skills, it's not that long since he could only scribble, he couldn't draw a circle. So to see a face with arms and legs and for him to say "Picture of Michael" to me is amazing!
Sunday, March 06, 2005
Saturday, March 05, 2005
So together we wandered around the shopping centre and then went to do lunch in a resturant together.
I had a lovely day, it was so nice to be able to get out and away and do some grown up type things without the kids!
Mothers Day tomorrow
Friday, March 04, 2005
Wednesday, March 02, 2005
Anyway, she did say that there is some loss of white brain matter in and around the end of the ventricles at the back of the brain. Given that he was extremely premature, and the stage of development that his brain was at when he was born, having had the bleeds into the ventricles etc there are some subtle changes in his brain, but no glaringly obvious bits missing etc.
His Learning Disability and the Autism come from the way his brain is wired, and this just doesn't show up on an MRI.
But Michael failed the facial muscle testing that he had done at the same time as his MRI, Michael has Bulbar Palsy. Although it doesn't show up on an MRI, because of where the damage is situated, it is seen as neurological, and explains the problems that he has with his feeding, and swallow reflex etc. When asked what this meant for the future in terms of eating and developing a swallow reflex, the neuro felt that things aren't likely to improve and that Michael is always going to have an issue with swallowing etc.
Tuesday, March 01, 2005
When he was in NICU they were done through his fontanelle, I think, and we never got to see them, we were only told about them.
But I guess by this time tomorrow, we will know what the MRI showed, or didn't as the case maybe. I have to admit to being a bag of nerves right now, I've hit the chocolate that's how bad it is.