Wednesday, April 26, 2006

Getting my head around things

What can I say?? We went to see the Resp on Monday 24th, and got the results of the recent 24 hour study! Not sure they got the full 24 hours because Michael was in a mood the day it was done! But there was enough....

We're back in 02 at night, when Michael's Heart Rate drops so do his SAT's. In order to keep his SAT's rate up, his heart rate is high, the resp said he would discuss this with the Cardiologist. He asked if Michael's heart-rate ever dropped into the 80's, and the only time it appears to do this is at night in his sleep, taking his SAT's with him.

So the 02 is our friend again for the foreseeable future, although it kind of feels like we've taken a step backwards, it's not one I am totally surprised about, given the difference in him when he was back in it a couple of weeks ago, but I have to confess it's not one I ever expected to take.

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Thursday, April 20, 2006


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There is something to be said for developing an imagination while playing, any ideas??

Sunday, April 16, 2006

Internet Trolls

There seems to be something in the air at the moment, one of the forum's I belong to recently had a woman claiming to be the mother of twins...she had built a website for them, pictures were posted, and hey presto, here's who this child really belongs too.....the devastation that the child's real mum, must have felt to see a picture of her child, with the words, died this afternoon, written underneath them.

When it was revealed that this was a hoax, there was a sense of shock, disbelief, and anger floating around, from the members there who had believed this womans story, who had offered support and who despite their own experiences had been able to offer support to someone they believed needed it, in the same way as we did when our babes were tiny. The people who know what it's like to really experience this, who still carry the scars of their experience are now left wondering and questioning everyone else around them, and how genuine these people are.

I've read and re-read the article two posts down about the Sarah Everson and her partner, who faked the birth of 6 babies, and one quote leapt out at me.

"I’m so afraid they’re not going to make it," she sobbed. "Nobody understands how hard this is. I know that they’re here. I know what I had to go through to get them here."

There are genuine preemie parents who do know how hard it all is, who know what their babies went through to survive, who sat and watched their little ones undergo numerous painful and distressing procedures in their fight for life, there are preemie parents out there who sat by helplessly and watched, as their little ones lost that fight.

We have enough in our lives, and on our plates, without the sad people in this world, like Sarah Everson who seem to think it's ok to make up a whole new alternate life for themselves, and take advantage of what in reality is a situation beyond comprehension.

Reached by phone late Tuesday, Sarah Everson offered no explanation. "I’m not talking to anybody right now," she said, "because nobody gets it."

No Sarah, I don't get it, I really don't understand why you felt it was ok to do something like this. I'm sure I'm not the only preemie parent who will struggle to understand why you thought this was ok......perhaps these people need to walk a day in our shoes.


I don't watch these reality tv programmes, so I had no idea who Shayne Ward is ~ but I really like the current single ~ no promises.

So I'm tempted to go buy the album tomorrow when it's released!

Friday, April 14, 2006

I am speechless


Couple’s 6 babies were only a hoax

By Matt Sednesky
Associated Press

GRAIN VALLEY, Mo. - The library books on multiple births crowded the couple’s coffee table. The bedroom-turned-nursery awaited the arrival of six newborns.
But in the end, authorities say Sarah and Kris Everson never had the sextuplets as claimed. All they had was what appears to be a big lie.

The couple’s dramatic story had holes in it from the start - from their mysterious withholding of information for more than a month to the unanimous response of area hospitals that they hadn’t helped deliver the newborns.

On Tuesday, authorities said the mystery had been solved - the entire tale was deemed a hoax aimed at tapping the generosity of others to pay the couple’s mounting bills.

"I have never dealt with anything like this," Police Chief Aaron Ambrose said. "The level of fraud like this involving people, I have not."

Gary Bradley, the city administrator, said charges against the Eversons were forthcoming. Prosecutors had not yet determined how much the couple profited from the scam or whether they would qualify for charges beyond the municipal level.

The Eversons - Sarah, 45, and Kris, 33 - claimed to have given birth to four boys and two girls on March 8. The babies were apparently in intensive care.

The tale exploded in the local spotlight Monday when The Examiner in Independence ran on its front page a photograph of the couple holding six one-piece baby outfits and announcing the births.

Hours before admitting it was a scam, Sarah Everson showed an Associated Press reporter pictures of her in maternity clothes, her baring a huge pregnant-looking midsection, even sonogram images she claimed were of her infants. She showed off a tiny nursery, a closet full of baby clothes and the tiny diapers premature newborns must wear.

She said the entire story of her children’s births was being kept secret by a court order enacted because a member of her husband’s family was trying to kill the Eversons and their new sextuplets.

"I’m so afraid they’re not going to make it," she sobbed. "Nobody understands how hard this is. I know that they’re here. I know what I had to go through to get them here."

Sarah Everson said a detective begin questioning her Tuesday evening; Bradley and Ambrose said the Eversons were interviewed at the police station for about an hour, during which they revealed the story was a scam. They were released pending charges.

After the Examiner’s initial story, the AP did not publish a story or transmit photos about the sextuplets over concerns of accuracy.

Reached by phone late Tuesday, Sarah Everson offered no explanation. "I’m not talking to anybody right now," she said, "because nobody gets it."

The Web site soliciting gifts was taken down Tuesday night.

Examiner Editor Dale Brendel said he was considering a front-page column to readers addressing the issue. He said the incident would force a review of his reporters’ verification practices.

"I think that we fell victim to the hoax. There were people out in the community who were doing fund-raisers already, and we feel bad for them and for us that we were the victims of that," Brendel said. "In retrospect, there were things we could have done better from a newspaper standpoint, in terms of our investigations and trying to flesh out some of the red flags there were about the story."

Thursday, April 13, 2006

A&E again

So todays little bit of excitement, to liven up a fairly boring day was a trip to A&E. To have this removed from the right nasal passage.  We haven't been to A&E for a while to have things removed from body orifices. I guess Michael kinda figured it was time for another visit.

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Not sure you wanna hear the wise cracks flying round the office DH works in!!

Monday, April 10, 2006


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The sun has come out, spring has sprung, and Michael wants the paddling pool out

Saturday, April 08, 2006

Parent of a Premature Child

If you're the parent of a Premature Child and your reading this. Then please drop by, say hello, and come and meet other preemie-child parents.

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Fun day

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Today we made Gingerbread

Sunday, April 02, 2006

Party Day

Oh how I wish I'd had a camera on me today!! We went to a friends 4th Birthday today. His mum had hired a children's entertainer for the afternoon.

He was wonderful, he was really, really good, didn't take him long to learn Michael's name!! But he had Michael up helping him doing some magic.

The real magic............ the look on Michael's face! It was priceless!